Sai Kaustav Dasgupta was too young to understand what the doctor was saying. He was immersed in his world of play and laughter. But his parents sat there stunned in disbelief. His mother had tears streaming down her cheeks. His father just stared into infinity unable to comprehend what the future held for him and his family. There was just one phrase that was resonating in their head, echoing off the walls of that doctor’s office. Osteogenesis Imperfecta. Their heads turned towards their tiny buddle of joy who had his hand wrapped in a cast. It broke their heart to know that Kaustav had Osteogenesis Imperfecta also known as the Brittle bone disease. It is a genetic disorder that leads to very brittle bones, which are prone to breaking. It has no cure.
Kaustav, their ever-smiling heartbeat, loved to dance. He ran around the house, from his mother to his father, swaying to the tunes of music. At three and a half months, he fell and suffered a fracture. He was taken to the hospital and plaster was set. While he was healing from the first, he suffered his second fracture. By the time he had blown the candles and cut the cake on his first birthday, he had undergone three fractures. Something was wrong. And his parents could feel it in ‘his’ bones.
After the diagnosis was made, a pall of grief descended on their family. The path ahead was difficult, but they decided they will wade through these tough times. Thus, began their story of determination and grit!
As far as Kaustav was concerned he had the toughest times. His physical activities were reduced to zero. He was stuck to a wheelchair. Dance his passion once, was now strictly prohibited. But this did not deter him. He took up singing. His mother a trained singer introduced him to music. He fell in love with the art of the seven notes. He won the Dishari Award for the Best Child Singer of West Bengal, 1999-2000. He shared the stage with legends like Anuradha Paudwal, Manna Dey, Anup Jalota, Rashid Khan and many others. Apart from composing more than 140 songs, he has also released a video DVD and MP3 video album.
So he found his silver lining. But that was not the end. He realized he can use his two fingers of his left hand on a computer. That opened up the world of designing for him. This penchant led him to become an international graphic designer, whose art finds home in global projects.
Today, the shelves of his home are brimming with awards including an honorary doctorate. His regular online talks across the world inflame the minds of many passionate men and women. Few copies of his book also stand there with his proud face on the cover, which has been published in 6 Indian languages. But his most valuable procession is the framed picture of his proud and loving family which stood by him throughout his toughest times.
28 years of life, 50 fractures, and 80% disability later, Kaustav is now a bright shining star that the world looks up to in their nights of helplessness and hopelessness. It is his life story, which is their guiding light of inspiration, through their troubles.
In the end, life is beautiful. Isn’t it?
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